Lost in the embrace of Amanda Lynn

Down the Drain

Posted in Breast cancer by amandalinn on January 10, 2009

As I whined about here in the comments, after my surgery they left a drain tube in my chest. It was very uncomfortable. When I bent forward, it felt like it was poking me from the inside, and sometimes when I moved around, the place where it came out my side felt a pinch.

I finally got it removed last Monday, having barely qualified in terms of “output” (the amount of stuff collected by the drain.)

Halfway through the “drain days” I spoke with a nurse on the phone. She mentioned she had hers for three weeks, and gave me some tips about not moving and causing more “output.” After that conversation, I walked around with my arm practically pinned to my side.

When the drain got removed, I expected it to be a huge relief, which it was, but it hurt more for a few days. Plus my muscles are tweaked from being unnaturally tense and holding my arm to my side. Plus I think the nerves are regrowing where the surgery was, so once in a while it feels like someone jabbed me with a needle.

And I keep wondering what this hard lump is; I expected it to be flat. Finally I realized at least part of it is my pectoral muscle. But the physician’s assistant said if it starts looking like I am “growing a breast” that it would mean fluid is building up and they’d have to drain it with a needle. She said it would not hurt because it would be in the scar area. I sure wish I knew what it was supposed to look like…

Next week I have my radiation tattoos, and the next day my herceptin. Then I guess about a week later I’ll be taking my lunches to “go to the tanning booth.” I think I’m going to list that as my status when I leave work for radiation.

My oncologist’s secretary was about to transfer me to the radiation office, but she stopped and said “Oh. By the way. Radiation is a piece of cake.” She paused and then said “compared to chemo.” It was nice of her to reassure me. My oncologist’s staff are the cream of the crop and spoil me, so that when other doctors’ staff don’t measure up, I get confused.

So I had the drain out Monday, sat around and whined on Tuesday, and went to w*rk on Wednesday. It took me until halfway through Thursday to get caught up enough to get bored…. I’m sure there was some work I could have found to do but screw that. They are lucky I showed up at all :)

We have houseguests coming for the weekend but I am going to try to act helpless. Maybe they will clean my house. It should be interesting. They are both female. One of them lives in a fairly spotless house and the other one has been homesteading and does not quite *have* a house yet, only trailers and partial structures. She visits when she wants to have a nice long bath. They are both long time Deadhead friends of my husband so I just blame the state of the house on him. They’ve been here before so I can’t really blame my illness :)

I’m feeling pretty good. It’s still a bit ouchy from time to time and my muscles still feel very tight. Mostly I’m tired from staying up watching the Daily Show and the Colbert Report on hulu to catch up on the news, and some South Park. My husband left town on business on Wednesday and will be back tonight. I always stay up late screwing around on the internet when he’s gone.

That is all for now. Thanks, everyone, for all the support!

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8 Responses

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  1. javajunkee said, on January 10, 2009 at 5:04 am

    just want you to know I’m thinking of you and keeping you in thoughts and prayers as you go through this. I’m glad you got the good news on the cancer being gone.

  2. pamajama said, on January 10, 2009 at 8:53 pm

    Holy crap, BatGirl. I’m surprised & amazed at how quickly you’ve jumped back into everything. “Radiation tattoos”? I’m totally in the dark here. Drains do not sound like any fun at all, but then for me neither are houseguests:) I’m just a baby like that.

    Thanks for letting me know you’re up & around and fine & as much of an incredible minimalist as ever:)

  3. morethananelectrician said, on January 10, 2009 at 11:23 pm

    Hopefully Comedy Central keeps you laughing. I have been falling back in love with South Park again…Cartman cracks me up!

    Glad to see you getting over these hurdles!

  4. birdpress said, on January 11, 2009 at 12:10 am

    I learned about radiation tattoos from Teeni, of the Vaguetarian Tea Room. Have you talked with her about this stuff? I’m glad you are dealing well with everything. You seem to be anyway! Good luck with the radiation, and with the houseguests!

  5. amandalinn said, on January 11, 2009 at 3:28 am

    Oh hell, I’m dealing least well with the house guests, and they are not even here yet. One is not coming.
    I said to the not always 100% awesome husband “I hope no one comes while you are out of town, but if that’s the only time X can come, that’s okay I guess.”
    Apparently he heard “blah blah blah blah okay blah.” Next I knew she was due on the day he left while I was at work. I asked what sort of constraints she had and he did not know if there were any. Reiteration on my part occurred at a higher volume. Apparently he heard “blah blah blah blah NO blah blah blah”. Next I knew she was due on Saturday. Saturday rolls up and she calls and says she can’t make it ever, because she has… constraints.
    Plus, this is all my fault because I told him to “never put me on the phone with anyone, ever”. Okay that was NINE YEARS ago, and I’ve been making an extreme effort to be a better person especially lately, and he had me on the phone with three of HIS friends and relatives in one day the week after surgery. I GIVE UP being a better person if he doesn’t even notice!
    I’m going back to being an antisocial bitch.

    er… except here ;-) Love you all :)

  6. teeni said, on January 12, 2009 at 3:48 am

    Hi Amandalinn. I just found you again through a comment you left at Red’s site. I just wanted to tell you that I felt hard areas in my chest along the scar of the mastectomy site, which turned out to be scar tissue. It took a long time for it to go away, but it doesn’t feel hard there anymore. The area where the drains were (had one in the armpit and one in the chest) seemed the most painful to me even after they removed the drains. I couldn’t lay on that side for a while after they were removed. But that went away too and it feels fine now. I did have swelling and the funny thing was my husband said exactly that it did look like my breast was trying to grow back. Probably because it started to protrude the way a breast does – I guess that is the only place for it to go when the fluid builds up. Anyway, we got that under control quickly. I hope your radiation goes well. I didn’t like getting the tattoos. I had never had one before so I didn’t know what to expect. It hurt but was over quick, like a hot pinprick. I had to have four. I’d like to know about your experience and if you are going to have reconstruction.

  7. amandalinn said, on January 12, 2009 at 3:55 am

    Teeni, Thank you so much, this is exactly what I was hoping someone would say, “yeah that happened to me and I didn’t blow up like that girl on willy wonka” or something like that anyway :)

  8. teeni said, on January 12, 2009 at 9:41 pm

    No problem. The only reason I ever mentioned my own cancer at my blog in the first place was in hopes that it could help others.

    So long as you don’t turn purple!!! ;)

    I get a lot of hits about chemo and I hope someone gets some information out of this…


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